Driving
CMT Research
with the
Patient’s Voice
With your help support love
nothing is impossible!
Drive Research
Drive Research
Turn your symptoms into science
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Join Team CMT
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Pledge Monthly
Start your Monthly Gift of $10 today or consider the many other ways to give!
Research CMT
Research CMT
HNF has been conducting patient-focused research dating back to 2007.
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Gift a Birthday
Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
What is CMT?
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About HNF
Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.
In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.
HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.
From Our Blog
LATEST
CMT and Mental Health: What the Data Is Telling Us This May
CMT and Mental Health: What the Data Is Telling Us This May May is Mental Health Awareness Month, and this year, HNF is using it as a moment to look honestly at something the CMT community has been living with for a long time: the emotional weight of this...
The 2026 CMT Summit: What We Built Together
The 2026 CMT Summit: What We Built Together Two days. One community that keeps growing. The numbers from this year's CMT Clinical Trial Readiness Summit tell a clear story. 96% of attendees rated their overall experience Excellent or Very Good. 93% said they would...
MDA Durable Medical Equipment (DME) Grant Program
MDA Durable Medical Equipment (DME) Grant Program If you are living with CMT and need help accessing essential mobility and daily living equipment, the Muscular Dystrophy Association (MDA) offers a Durable Medical Equipment (DME) Grant Program that may be able to...
They Rode for a Cure and you Can Still Be Part of It
They Rode for a Cure and you Can Still Be Part of It We are beyond grateful! On May 3, 2026, our incredible team of riders took on the TD Bank Five Boro Bike Tour pedaling through all five boroughs of New York City and together they raised over $25,000 to advance...
A New Program for Men Living with CMT
HNF Dream Team Ambassador Daniel Blevins is bringing something powerful to our community. HNF is proud to partner with our CMT Dream Team Ambassador, Daniel Blevins, MSHS, NBC-HWC, to bring the CMT Unbroken Men's Cohort to our community. Strength. Identity. The...
2026 Clinical Trial Readiness Summit
Thank You for an Incredible 2026 CMT Clinical Trial Readiness Summit Dear CMT Summit Attendees, Thank you for being part of our 2026 CMT Summit, our biggest gathering yet, with over 200 attendees coming together to connect, learn, and inspire one another. We are...
HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference
HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference The Hereditary Neuropathy Foundation (HNF) had a strong presence at the 2026 MDA Clinical & Scientific Conference in Orlando last week, where more than 1,900 leaders across science,...
CMT Thrive Guide
Featured
The 2026 CMT Summit: What We Built Together
The 2026 CMT Summit: What We Built Together Two days. One community that keeps growing. The numbers from this year's CMT Clinical Trial Readiness Summit tell a clear story. 96% of attendees rated their overall experience Excellent or Very Good. 93% said they would...
HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference
HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference The Hereditary Neuropathy Foundation (HNF) had a strong presence at the 2026 MDA Clinical & Scientific Conference in Orlando last week, where more than 1,900 leaders across science,...
Webinar Recording: Why CMT Biomarkers Can’t Wait
Webinar Recording: Why CMT Biomarkers Can’t Wait Thank you to everyone who joined HNF’s live webinar, Why Biomarkers Can’t Wait, focused on the urgent need to develop meaningful, regulatory-ready biomarkers for Charcot–Marie–Tooth, (CMT). HNF leadership and leading...
Allison Moore Receives Award for Community Impact in Research
Muscular Dystrophy Association’s Legacy Awards Honor Innovators in Clinical and Scientific Research, and Community Impact at the 2026 MDA Clinical & Scientific Conference in March MDA Legacy Award for Achievement in Clinical Research to honor Michio Hirano, MD,...
Featured Webinars
CMT Summit Patient Voices
At the 2025 CMT Summit and Retreat in Nashville, the Hereditary Neuropathy Foundation (HNF) placed patient and care partner voices front and center. Through powerful firsthand stories shared on stage and in intimate breakout sessions, attendees experienced the raw...
Webinar: Making Sense & Science of CMT Symptoms
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
CMT THRIVE Webinar – Cannabis & Neuropathy Webinar
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
Active Hands
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
UPCOMING EVENTS
2026 CMT Biobank Dates and Cities Are Here
🩸2026 CMT Biobank Dates + Cities Are Here! The CMT Biobank continues to drive critical research forward — and we’re excited to announce our 2026 collection dates and cities. Are we coming to a city near you? HNF is seeking individuals with a CMT diagnosis to...
Run With Purpose. Give With Heart.
On November 5, 2023 – Runners will take on the marathon to support Charcot-Marie-Tooth Disease research.