They Rode for a Cure and you Can Still Be Part of It We are beyond grateful! On May 3, 2026, our...
Blog Category
Team CMT Members
Total posts in Category: 64
Passion for Movement. Power for Change.
On Sunday, November 2, 2025, NMD Pharma will lace up their running shoes and take on the TCS New...
CMT Warriors Unite: Rock, Roll, & Make a Difference in San Antonio, TX
Event Details: San Antonio, TX: December 7-8, 2024 (5K, 10K, Half Marathon, Full Marathon)
Unstoppable Skyler Fisher: Triumphing Across Continents with CMT
In the fast-paced world of para triathlons, one name stands out among the rest: Skyler Fisher, a dynamic 19-year-old powerhouse representing Team USA.
TD Bank Five Boro Bike Tour
HNF is thrilled to have been chosen for the 14th year as a Charity Partner for the TD Bank Five Boro Bike Tour.
Bike for CMT Research | TD Bank Five Boro Bike Tour
HNF is thrilled to announce that we have been chosen as a charity partner for the TD Bank Five...
Run With Purpose. Give With Heart.
On November 5, 2023 – Runners will take on the marathon to support Charcot-Marie-Tooth Disease research.
Meet Michael Watkins – Team CMT Member
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
Team CMT – 10 Years Strong
Team CMT Accomplishments and Founding Story
Telling Our Story
Lots of people have seen Chris Wodke in her Team CMT uniform but fewer have seen her in her other uniform, as a member of the National Ski Patrol (NSP).
Catching Up with Team CMT Member, Gabrielle Blakey
I felt like “The Little Engine That Could.” I decided that day that CMT does not define me, it’s just a part of me. Read Gabrielle’s inspiring story here!
Meet HNF’s Newest Team CMT Member, Lisa Mormann
“I may have Charcot-Marie-Tooth (CMT), but it does not have me.”
Categories
Advocacy (10)
Awareness (42)
Centers of Excellence (13)
CMT (2)
CMT en Español (1)
CMT Summit (62)
CMT Update (74)
CMT-Connect (29)
CMT-Connect Webinars (11)
Webinars – Accessible Travel (3)
Webinars – Adaptive Driving (2)
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Webinars – Breathing (1)
Webinars – Canine Companions (1)
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Webinars – Dating and Relationships (3)
Webinars – Family Planning (1)
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Webinars – Genetic Testing (3)
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Webinars – Surgery (2)
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Community (6)
Emerging Technologies (1)
Faces of CMT (2)
Faces of CMT – Addie (2)
Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (2)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
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Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
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Emotional and Mental Health (9)
Family Planning (1)
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Genetic Testing (12)
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Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
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Nutrition (5)
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Pain (8)
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PT and Exercise (26)
Research and Critical Trials (41)
School & College (8)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (6)
Pediatrics & CMT (13)
Registry (19)
Research (106)
School Outreach Program and Team CMT Kids (3)
Special Events (3)
Bike New York (21)
Other Events (5)
Spin-a-thon (7)
TCS New York City Marathon (9)
Team CMT Members (64)
The CMT Genie (6)
TRIAD (31)
TRIAD – Clinical Trial Readiness (6)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (12)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (24)
CMT Type – CMT1B (4)
CMT Type – CMT1X (5)
CMT Type – CMT2A (11)
CMT Type – CMT2C (5)
CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (10)
Upcoming Events (2)
Ways to Give (6)
Awareness (42)
Centers of Excellence (13)
CMT (2)
CMT en Español (1)
CMT Summit (62)
CMT Update (74)
CMT-Connect (29)
CMT-Connect Webinars (11)
Webinars – Accessible Travel (3)
Webinars – Adaptive Driving (2)
Webinars – Bracing (2)
Webinars – Breathing (1)
Webinars – Canine Companions (1)
Webinars – Cannabis (4)
Webinars – Dating and Relationships (3)
Webinars – Family Planning (1)
Webinars – FEATURED (7)
Webinars – Genetic Testing (3)
Webinars – Home Accessibility (2)
Webinars – Inclusive Employment (3)
Webinars – Inspire Community (1)
Webinars – Legal Rights and Benefits (3)
Webinars – Newly Diagnosed (5)
Webinars – Nutrition (3)
Webinars – Pain (5)
Webinars – Podcasts (3)
Webinars – PT and Exercise (9)
Webinars – Research and Clinical Trials (14)
Webinars – School and College (5)
Webinars – Surgery (2)
Webinars – Telemedicine (1)
Webinars- Emotional and Mental Health (5)
Community (6)
Emerging Technologies (1)
Faces of CMT (2)
Faces of CMT – Addie (2)
Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (2)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (47)
Gene Therapy (1)
GRIN Patient Registry (44)
HNF Team (10)
Industry (6)
Living with CMT (88)
Media (1)
Medical professionals (3)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (10)
Clinical Trials (23)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (36)
Patience Resources (0)
Accessible Travel (4)
Bracing (12)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (3)
Genetic Testing (12)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (11)
Nutrition (5)
Occupational Thearpy (2)
Pain (8)
Podcasts (2)
Podiatry (4)
PT and Exercise (26)
Research and Critical Trials (41)
School & College (8)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (6)
Pediatrics & CMT (13)
Registry (19)
Research (106)
School Outreach Program and Team CMT Kids (3)
Special Events (3)
Bike New York (21)
Other Events (5)
Spin-a-thon (7)
TCS New York City Marathon (9)
Team CMT Members (64)
The CMT Genie (6)
TRIAD (31)
TRIAD – Clinical Trial Readiness (6)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (12)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (24)
CMT Type – CMT1B (4)
CMT Type – CMT1X (5)
CMT Type – CMT2A (11)
CMT Type – CMT2C (5)
CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (10)
Upcoming Events (2)
Ways to Give (6)
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