HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference The Hereditary...
Blog Category
GRIN Patient Registry
Total posts in Category: 44
Allison Moore Receives Award for Community Impact in Research
Muscular Dystrophy Association’s Legacy Awards Honor Innovators in Clinical and Scientific...
The Nerve to Cure Event, Columbia Missouri
Join us Saturday, October 4th from 12pm – 8pm October 4, 2025
The Nerve to Cure
CMT Social + Science Day with Evening Fundraiser Dinner
GRIN is Changing the Game for CMT Research
6,000+ Strong Across 72 Countries — 2025 GRIN is Changing the Game for CMT Research! We’re...
First Humans Dosed in New CMT Drug Trial
A New CMT Treatment Is One Step Closer Augustine Therapeutics Begins Phase I Trial of AGT‑100216...
How Does CMT Affect You?
Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!
HNF Awards the inaugural HNF Clinical Translation Fellowship
HNF Awards the inaugural HNF Clinical Translation Fellowship in the amount of $170,000 to Kayla...
Breaking News for SORD Deficiency Patients
The INSPIRE trial is a Phase 3 double-blind placebo-controlled registrational study evaluating the effect of once-daily (QD) oral govorestat (AT-007) in 56 patients aged 16-55 with SORD Deficiency in the US and Europe.
HNF Contributes CMTRN Data to C-Path’s RDCA-DAP
HNF Contributes CMTRN Data to C-Path’s RDCA-DAP, Strengthening Research Capabilities for Inherited...
New CMT gene discovery, CRYAB
Do you have late onset autosomal dominant CMT2 – subtype unknown, with breathing involvement, unexplained cardiac complications, and/or congenital cataracts?
HNF’s CMT Genie: Because genetic testing for CMT has never been more critical
Collaborative efforts between researchers, healthcare providers, and patients, facilitated by the Hereditary Neuropathy Foundation, has created a synergy that has accelerated the pace of discovery.
CMT Biobank: We Need Your HELP!
HNF is excited to continue collecting samples for researchers and industry to help develop treatments for CMT.
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