CATEGORIES: GRIN Patient Registry | Living with CMT | Registry | Research | Research and Critical Trials

How Does CMT Affect You?

by Courtney | Sep 18, 2024 | 0 comments

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CMT and Mental Health: What the Data Is Telling Us This May

by Courtney | May 18, 2026 | Emotional and Mental Health, Living with CMT | 0 Comments

CMT and Mental Health: What the Data Is Telling Us This May May is Mental Health Awareness...

The 2026 CMT Summit: What We Built Together

by Courtney | May 18, 2026 | CMT Summit, Featured, Living with CMT, Newly Diagnosed, Our Impact, Past Events, Patient-Focused Research | 0 Comments

The 2026 CMT Summit: What We Built Together Two days. One community that keeps growing. The...

MDA Durable Medical Equipment (DME) Grant Program

by Courtney | May 18, 2026 | Bracing, Living with CMT, Newly Diagnosed | 0 Comments

MDA Durable Medical Equipment (DME) Grant Program If you are living with CMT and need help...

A New Program for Men Living with CMT

by Courtney | May 18, 2026 | Living with CMT | 0 Comments

HNF Dream Team Ambassador Daniel Blevins is bringing something powerful to our community. HNF is...

HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference

by Courtney | Mar 17, 2026 | Advocacy, Awareness, Featured, GRIN Patient Registry, Living with CMT, Our Impact, TRIAD - Clinical Trial Readiness | 0 Comments

HNF Driving Progress at the 2026 MDA Clinical & Scientific Conference The Hereditary...

2026 CMT Biobank Dates and Cities Are Here

by Courtney | Feb 15, 2026 | Research, Upcoming Events, Ways to Give | 1 Comment

🩸2026 CMT Biobank Dates + Cities Are Here! The CMT Biobank continues to drive critical research...

Webinar Recording: Why CMT Biomarkers Can’t Wait

by Courtney | Feb 6, 2026 | Featured, Research, Research and Critical Trials, Webinars - Research and Clinical Trials | 0 Comments

Webinar Recording: Why CMT Biomarkers Can’t Wait Thank you to everyone who joined HNF’s live...

HNF TRIAD Partner: A note to the CMT community from NMD Pharma

by Courtney | Feb 3, 2026 | CMT Type - CMT1A, CMT Type - CMT1B, CMT Type - CMT1X, CMT Type - CMT2A, Research, Research and Critical Trials | 0 Comments

With gratitude and respect: a note to the CMT community from NMD Pharma Dear members of the CMT...

Allison Moore Receives Award for Community Impact in Research

by Courtney | Jan 14, 2026 | Advocacy, Awareness, Featured, Gene Therapy, GRIN Patient Registry, Living with CMT, Research, Research and Critical Trials, TRIAD | 0 Comments

Muscular Dystrophy Association’s Legacy Awards Honor Innovators in Clinical and Scientific...

Biomarkers Can’t Wait

by Courtney | Dec 12, 2025 | Research, Webinars - Research and Clinical Trials | 0 Comments

Webinar Announcement: Biomarkers Can’t Wait – Accelerating the Path to CMT Treatments Biomarkers...

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How Does CMT Affect You?

Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!

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