Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.
Blog Category
Team CMT Members
Total posts in Category: 64
Big Island Circumnavigation For Charcot-Marie-Tooth Awareness
Jennifer Decker has Charcot-Marie-Tooth and is set to embark on the first Big Island Circumnavigation.She won’t let CMT stop her for her dreams.
Ride For Charcot-Marie-Tooth Awareness & Research: 2016 TD Bank Five Boro Bike Tour
The Hereditary Neuropathy Foundation (HNF) is thrilled to participate as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour for the fifth year in a row. This is an extraordinary event where participants bike through all five New York boroughs to help increase awareness and raise dollars to fund Charcot-Marie-Tooth (CMT) research.
Champions For Charity: Helping Those Living With Charcot-Marie-Tooth
What if every purchase you make this holiday season could earn dollars for Charcot‐Marie‐Tooth...
Team CMT: Join The Movement & Make A Difference!
The holiday season is a great opportunity to make a difference for those living with...
Thursday, December 3 – Sunday, December 6: Champions for Charity Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop Hereditary Neuropathy Foundation is participating...
Update on Michael Watkins – Team CMT Member
Michael Watkins completed the Leadville Trail 100 MTB race on August 15, 2015 in Leadville, CO. The trail race is widely considered one of the toughest mountain biking races in the country.
My last month in numbers
It has been entirely too long since I’ve updated my blog and so much has happened since late April. I thought I would share some info on what I’ve been up to since my last post on April 29th
It’s probably nothing
Blog – I’m taking on my biggest challenge yet this weekend, it is the 3 Mountain 3 State Challenge in Chattanooga, TN.
Work, Ride, Eat, Sleep, Repeat…
One of the things that keeps my motivation up is almost every time I go on a ride I set new personal records on the same segments that I ride weekly.
March 29, 2015: OK…Now What?
January 15th 2015. That was the day I got my official invite to the race, that was the day of no turning back, that was the day I realized I was going to riding my bike a lot this spring and summer, a whole lot!
Bike NY Spotlight: Kristin Gelzins
I am signing up for my VERY FIRST Five Boro Bike Tour. I need your help to find a cure for CMT. Please consider donating to my fundraising page to help me, my family and everyone living with CMT
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Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (2)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (47)
Gene Therapy (1)
GRIN Patient Registry (44)
HNF Team (10)
Industry (6)
Living with CMT (88)
Media (1)
Medical professionals (3)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (10)
Clinical Trials (23)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (36)
Patience Resources (0)
Accessible Travel (4)
Bracing (12)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (3)
Genetic Testing (12)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (11)
Nutrition (5)
Occupational Thearpy (2)
Pain (8)
Podcasts (2)
Podiatry (4)
PT and Exercise (26)
Research and Critical Trials (41)
School & College (8)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (6)
Pediatrics & CMT (13)
Registry (19)
Research (106)
School Outreach Program and Team CMT Kids (3)
Special Events (3)
Bike New York (21)
Other Events (5)
Spin-a-thon (7)
TCS New York City Marathon (9)
Team CMT Members (64)
The CMT Genie (6)
TRIAD (31)
TRIAD – Clinical Trial Readiness (6)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (12)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (24)
CMT Type – CMT1B (4)
CMT Type – CMT1X (5)
CMT Type – CMT2A (11)
CMT Type – CMT2C (5)
CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (10)
Upcoming Events (2)
Ways to Give (6)
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